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Medical Conditions

UPDATED: 07.12.2023
In this section you can find support for:
- allergies
- ankylosing spondylitis
- arthritis
- bladder & bowel conditions
- covid-19 / coronavirus
- diabetes
- epilepsy
- female health including Menopause
- head, brain injury, stroke and aphasia
- heart & chest conditions
- kidney and liver disorders
- male health
- meningitis & septicaemia (sepsis)
- muscular dystrophy
- neurological disorders
- spinal cord injury
- thyroid
- transplant and organ donation

other conditions & organisations

Support information for all other concerns such as cancer, dementia, congenital and genetic conditions can be found via the main navigation menu.

NHS
Advice and information for many medical conditions both listed and unlisted, can be found on the NHS website

Allergies


Allergy UK 

Supporting those with allergy and intolerance.

Anaphylaxis Campaign 

Information and support for anyone living with severe allergies.

Asthma + Lung UK 

Advice and support for anyone affected by Asthma and other lung conditions.
Helpline: 0300 222 5800  (lines open Monday –Friday 9.15am – 5pm)

Ankylosing Spondylitis

National Axial Spondyloarthritis Society - NASS 

Supporting anyone affected by Axial SpA (AS) including Ankylosing Spondylitis.

Arthritis

Versus Arthritis 

Versus Arthritis offer support advice to anyone living with arthritis.
Helpline: 0800 5200 520 (lines open Monday – Friday 9am - 6pm)
Email: helpline@versusarthritis.org 

Bladder and Bowel Conditions 

Bladder & Bowel UK 

Information and support for adults and children with bladder or bowel problems.

Colostomy UK 

Support for people living with a stoma. 
Helpline: 0800 328 4257 (lines open 24 hours a day)
Live Chat: online Monday – Friday 9am – 5pm 

Crohn’s & Colitis UK  

Support for Crohn’s Disease, Ulcerative Colitis or other forms of IBD, Inflammatory Bowel Disease.

ERIC 

Information and support on bowel and bladder conditions in children and teenagers.
Helpline: 0808 801 0343 (lines open Monday – Thursday 10am – 2pm)

Covid-19 – Coronavirus

COVID-19 advice and services - NHS 

NHS advice about COVID-19 and COVID-19 services, including testing, vaccination and the NHS COVID Pass.

Frontline 19 

Free, confidential counselling and support for those employed in the NHS and other frontline occupations. 

Diabetes 

Diabetes UK 

Diabetes UK offers support and advice to anyone with diabetes.
Careline: 0345 123 2399 (lines open Monday to Friday 9am-6pm) 
Email: helpline@diabetes.org.uk 

Juvenile Diabetes Research Foundation 

Offering leaflets, magazine and packs for young people affected by Type 1 diabetes.   

Epilepsy 

Epilepsy Action 

Advice, support and information on all aspects of living with epilepsy.
Helpline: 0808 800 5050 (lines open Monday – Friday 8.30am – 5pm, Saturday 10am – 4pm)
Live Chat: (Monday – Friday 10am – 4pm)
Email: helpline@epilepsy.org.uk 

Epilepsy and Pregnancy 

Information for women with epilepsy about the time of labour and giving birth

Epilepsy in Babies 

Information for parents of young babies with epilepsy. 
Helpline: 0808 800 5050 (lines open Monday – Friday 8.30am – 5pm, Saturday 10am – 4pm)

Epilepsy Society 

Information and support for anyone living with epilepsy.
Helpline: 01494 601400 (lines open Monday - Friday 9am - 4pm, Monday & Wednesday to 7.30pm & Saturday 9am – 12.30pm)
Email: helpline@epilepsysociety.org.uk 

Young Epilepsy 

Advice information for young people with epilepsy.
Email: helpline@youngepilepsy.org.uk 

Female Health

Endometriosis 

Helping those affected to improve their lives and decrease the impact endometriosis has on them and their families.
Helpline: 0808 808 2227 (check website for variable opening hours)

Menopause - NHS 

Information on the symptoms and possible treatments. 

The Daisy Network 

Information and support for women affected by Premature Ovarian Insufficiency – POI.

The Menopause Charity 

Information and advice on the menopause.

Women’s Health Concern 

The patient section of the British Menopause Society providing advice, information and reassurance.

Head, Brain Injury, Stroke and Aphasia

Afasic 

Afasic support children and young adults (up to 25) with communication disability, as well as their parents and the professionals working with them. Network of support groups, publications, training and online message boards.
Helpline: 0300 666 9410 (lines open Monday & Wednesday 10.30am – 4pm)  

Brainkind

Information and advice for anyone dealing with the unique needs of brain or head injury rehabilitation. 

Encephalitis Society 

Offering support and information for anyone affected by encephalitis. 

Headway 

Headway provides support and advice to anyone affected by an acquired brain injury. A network of local groups and branches throughout the UK offer a wide range of services.
Helpline: 0808 800 2244 (lines open Monday - Friday 9am-5pm).
Email: helpline@headway.org.uk 

Headway - Brain (cerebral) aneurysm  

Information and support from Headway for those affected by a brain aneurysm.
Helpline: 0808 800 2244 (Monday - Friday 9am-5pm).
Email: helpline@headway.org.uk 

Headway - Coma 

Information from Headway for families of patients in a Coma or reduced awareness state.

PEEPS – HIE 

Information and support for families affected by Hypoxic-Ischaemic Encephalopathy HIE. Also called birth asphyxia, HIE can cause injury to the brain.
Support Line: 0800 987 5422 (lines open 9am – 5pm)
Email: info@peeps-hie.org

Stroke Association  

Offering support to anyone affected by a stroke and provide advice on preventing further strokes.
Helpline: 0303 3033 100 (lines open Monday - Friday 9am - 5pm, Saturday 10am – 1pm) 
Email: helpline@stroke.org.uk 

The Brain and Spine Foundation 

Offering support and advice about prevention, treatment and care of disorders of the brain and spine.
Helpline: 0808 808 1000 (lines open Monday – Friday 9am - 4pm)  

The Brain Tumour Charity 

Supporting anyone affected by a brain tumour, as well as family, carers and friends.
Helpline: 0808 800 0004 (lines open Monday – Friday 9am -5pm)
Email: support@thebraintumourcharity.org 

Heart and Chest Conditions 

Beat SCAD (Spontaneous Coronary Artery Dissection) 

Raising awareness of SCAD - Spontaneous Coronary Artery Dissection an under diagnosed heart condition that affects people with few or none of the normal risk factors for heart disease.  

British Heart Foundation – BHF 

Supporting anyone with a heart condition and offers information to help reduce the risk of heart and circulatory related illness. Helplines are staffed by cardiac nurses and information officers.
Helpline: 0808 802 1234 (lines open Monday - Friday 9am – 5pm) 
Chat Online: available Monday – Friday 9am – 5pm

Cardiac Risk in the Young - CRY 

Information on undiagnosed cardiac conditions in young people and what in involved in screening.

Cardiomyopathy UK 

Support and information on all types of cardiomyopathy, how to manage the condition and live well.
Helpline: 0800 018 1024 (Monday – Friday 8.30am – 4.30pm)

Children’s Heart Federation 

Supporting children and young people with congenital and acquired heart conditions, as well as their families.
Information Line: 0300 561 0065 (lines open Monday – Friday 9.30am – 5pm)

My Heart 

Support for young people diagnosed with a life threatening heart condition.

Pulmonary Fibrosis 

Information, support & practical guidance for anyone living with and affected by pulmonary fibrosis. 

Kidney and Liver Disorder

Anthony Nolan Trust 

The Anthony Nolan Trust holds a stem cell register, with further information online or via the helpline.
Information line: 0303 303 0303 (lines open Monday – Friday 8am -5.30pm)

British Bone Marrow Registry  

Information on bone marrow donation including details of how to join the register.

British Liver Trust  

Support information for affected by a liver condition.
Helpline: 0800 652 7330 (lines open Monday –Friday 9am – 3pm)
Email: helpline@britishlivertrust.org.uk 

Kidney Care UK 

Information and support for everyone affected by kidney disease.

National Kidney Federation - NKF  

Organised by Kidney Patients for Kidney Patients offering support and information online and via the helpline.
Helpline: 0800 169 0936 (lines open Monday - Thursday 8.30am - 5pm, Friday 8.30am – 12.30pm)

Male Health

Sexual Dysfunction - NHS 

NHS information on sexual concerns, including erectile dysfunction causes and treatments.

Vasectomy - NHS 

NHS information on vasectomy.

Meningitis and Septicaemia (Sepsis)

Meningitis Now 

Meningitis explained and support for those affected. 
Helpline: 080 880 10 388 (lines open Monday – Thursday 9am- 4pm, Friday 9am – 1pm)

Meningitis Research Association 

How to recognise the symptoms of meningitis in babies, toddlers or adults; support for anyone affected by meningitis or septicaemia.
Helpline: 080 8800 3344 (lines open Monday – Friday 9am -5pm)

Sepsis  

The Sepsis Trust offers information and support for anyone whose life has been affected by Septicaemia (Sepsis).
Helpline: 0808 800 0029 (lines open Monday – Friday 9.30am – 4.30pm)

Muscular Dystrophy

Muscular Dystrophy UK 

Information and support for anyone living with a muscle wasting condition, including Muscular Dystrophy, Myasthenia Gravis, Myositis, Duchenne Muscular Dystrophy and others.
Helpline: 0800 652 6352 (lines open Monday – Thursday 10am – 2pm) 

Myaware  

Supporting those diagnosed with Myasthenia Gravis and their families.

Neurological Disorders

Batten Disease Family Association - BDFA

Batten Disease is a paediatric neurodegenerative disorder. The BDFA support those families affected, as well as the professionals who care for the child or young adults. 

MND Scotland 

Support for anyone affected by Motor Neurone Disease in Scotland.

Motor Neurone Disease Association 

Information and support for anyone living with a diagnosis of MND in all its forms - ALS, PBP, PMA and PLS.
Helpline: MND Connect: 0808 802 6262 (lines open Monday–Friday 9am-5pm & 7pm-10.30pm)
Email: mndconnect@mndassociation.org 

Multiple Sclerosis Society 

Support information for anyone affected by MS, with a network of local branches.
Helpline: 0808 800 8000 (lines open Monday – Friday 9am - 7pm)
Information on different types of cannabis and their possible use for people with MS 

MS Trust 

Information on Sativex and MS.

MS-UK 

Providing support advice for anyone affected by MS.
Advice: 0800 783 0518 (lines open Monday – Friday 10am – 4pm) 

Parkinsons UK 

Offering support to anyone affected by Parkinson’s disease. Local groups can facilitate bringing together anyone affect along with carers and families.
Helpline: 0808 800 0303 (lines open Monday – Friday 9am-6pm, Saturdays 10am – 2pm)
Email: hello@parkinsons.org.uk
NGT Relay: 18001 0808 800 0303 (for use  with smart phones, tablets & PC’s) 

Progressive Supranuclear Palsy - PSP 

Information and support for anyone affected by PSP or CBD – Corticobasal Degeneration.

Spinal Cord Injury 

Aspire  

Providing practical help to people who have been paralysed by Spinal Cord Injury. 

Back Up 

Support for everyone whose life is affected by a spinal cord injury. 

Thyroid

NHS - Underactive thyroid including Hashimoto's disease

Thyroid UK 

Providing information and resources to promote effective diagnosis and appropriate treatment for people with thyroid disorders.

Transplant and Organ Donation 

Organ Donation 

Information about organ donation in England.

Organ Donation Wales 

Information on how organ donation works in Wales.

Stem Cell Transplant – NHS 

Information from The Blood & Transfusion service on Stem Cell donation and transplant. 

Other Conditions and Organisations

AIMS - Autoimmune Disease 

Information on Autoimmune Disease.

Dental Health 

Information about dental services available on the NHS.

Health Care & Professionals Council – HCPC 

The regulatory body for health therapy professionals, including range of independent practitioners from art therapy to speech and language. 

Hope Support Services 

For young people aged 11 – 25 when a family member is diagnosed with a life-threatening illness. Support for as long as you need it.

Patients Association 

Working for better access to accurate and independent information for patients and the public; equal access to high quality health care for patients; and the right for patients to be involved in all aspects of decision making regarding their health care.
Helpline: 0800 345 7115 (Monday – Friday 9.30am – 5pm)
Email: helpline@patients-association.com 

Narcolepsy UK 

Support for those whose lives are affected by narcolepsy. 

NHS - Intensive care 

Intensive care units (ICUs) are specialist hospital wards that provide treatment and monitoring for people who are very ill. ICUs are also sometimes called critical care units (CCUs) or intensive therapy units (ITUs).

Together For Short Lives 

Working for all children with life-threatening and life-limiting conditions and all those who support, love and care for them. Website includes search for palliative care in your area and an information request form.
Helpline: 0808 8088 100 (lines open Monday - Friday 10am – 4pm) Live Chat: Online Monday – Friday 10am – 4pm