A list of genetics services and support groups, related to the Dispatches programme, When Cousins Marry
These websites are external and open in new browser windows.
Genetics Counselling
The first step to genetics counselling is to make an appointment with your GP, who will refer you. You
can download this list of genetics services local to your area (opens in a new
window)
[Word doc; 32KB].
Support Groups
The Progress Educational Trust (opens in a new window)
BioNews: Passport to Parenthood (opens in a new window)
Society for Mucopolysaccharide Diseases (opens in a new window)
Society for Mucopolysaccharide Diseases (opens in a new window)
Child Liver Disease (opens in a new window)
Kidney Research UK (opens in a new window)
Patient UK: Rare Diseases (opens in a new window)
Contact a Family: Homepage (opens in a new window)
Contact a Family: Rare Diseases (opens in a new window)
Genetic Alliance UK (opens in a new window)
Rare Disease UK Members (opens in a new window)
Save Babies UK (opens in a new window)
OrphaNet: the portal for rare diseases and orphan drugs (opens in a new window)
Rare Cancer Alliance (opens in a new window)
British Paediatric Surveillance Unit (opens in a new window)
Patient UK: Patient Support: Children (opens in a new window)
Patient UK: Patient Support: Children – Medical Conditions Category (opens in a new window)
Cystinosis Foundation UK (opens in a new window)
Propionic Acidemia Foundation (opens in a new window)
BILD (British Institute of Learning
Disabilites) (opens in a new window)
Campion House
Green Street
Kidderminster
Worcestershire
DY10 1JL
Tel: 01562 723010
Best time to telephone: 9am to 5pm, Monday to Friday.
CLIMB (Climb National Information and
Advice Centre for Metabolic Diseases) (opens in a new
window)
176 Nantwich Road
Crewe
CW2 6BG
Tel: 0800 652 3181 Freephone Family Service Helpline
Tel: 0845 241 2172
Fax: 0845 241 2174 e-mail: info.svcs@climb.org.uk
