I have watched the whole series with great interest, tears and laughter!! I would like to let Williams family know about a "Safe space". They have a website and the system would allow the family to put him to bed safely and no longer have to lie with him especially following Mums recent diagnosis. I hope this information can be passed to them. They are very expensive but the local authority could help with funding or they have a list of various charities that can help too. I work with children and families with various special needs and those with a safe space now enjoy a good nights sleep. Good Luck!! Can't wait for the next in the series.
Posted by Karen Wilson from Cheshire. on 19/05/2009 21:11:32
We have enjoyed your programme enormously, it is very interesting watching different peoples stories. we have a son, who has arthrogryposis and so can relate to little Zoe easilly. she is an inspiration to us and gives us great hope for our childs future.
Posted by Sally and Simon from Hampshire on 02/05/2009 21:56:06
Thank you for making such a wonderful series. I am the mother of a 7 year old with Spina Bifida and I am always moved and informed by the programmes. Hearing parents talk who are in similar situations can be painful but it is also so helpful. Also, I get to see that the care and interventions we get in Switzerland where we live are second to none. We are very lucky. Cannot wait for the next programme.
My husband and myself met Chris and David Spears (Emily’s Paternal Grandparents) in 1978 in Kenya. They were a wonderful family and we spent many happy, comical times with them and their children Michael and Richard (Emily’s Daddy). We saw them last in 1981/82 when we travelled from Buradah, Saudi Arabia to Rhiyad where David was then working. Unfortunately, we then lost touch. We were so surprised and saddened to see this wonderful little girl on Chanel 4 yesterday evening but know that as long as she has such a wonderful family she will always have the best love in the world.
i have a husband and 2 kids with ts i would like willams parents to email and my be meet me from what i herd on tv last night there is a lot thay do no about ts
Guys at Chanell 4, PLEASE make the eps longer, an hour per year (thats really 45 mins not including breaks). is too short for 1 year of the childrens lives.
i was in tears last night after watching that programme i was born with spina bifdia and i am 27 now and i went throw the same problems and it just made me cry to see that little girl going throw the same things as i did ive had an operation on my bowels and bladder its the best thing i have ever watched showing people what parents and the poeple after go throw with been disabiled thank you channel 4 for showing and making a programme like this
this was very good i believe there are past episodes my daughter is disablied like one of the kids and same age would like to have see all series from the start as coping is not easy for anyone the kids are great kids never give up no matter what brave soilders..
Superb program nice to see how other people cope and hopefully raise peoples awareness of these conditions. My youngest daughter is nearly two and has Trisomy 9P. My two elder daughters are brilliant at looking after her and miss out on so much when she is in and out of hospital. I hope people who know me and my daughter have watched this program and can hopefully understand a little more about the condition
i like this program as its amazing watching how others cope i have a 7 year old son with a illness in which is very rare my son has neurofibromatosis you can spell it nf1 4 short he has a tumer whitch can not be removed and a shunt which drains water off his brain he bin threw alot in his life and always cums out fighting he is a brave boy thanks saz
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