Born to Be Different

The First Three Years

People

Friday 24 April 2009

An overview of the first three years of each child's life.


 
Hamish has Achondroplasia, or dwarfism, and as his restricted height becomes more obvious, his parents learn about leg-lengthening surgery.


 
Shelbie has spent most of her life in hospital due to a rare chromosome disorder called Partial Trisomy 9P and her mum Vicky has had to come to terms with the fact that she is likely to outlive her daughter.


 
William's genetic condition, Tuberous Sclerosis, is causing him to suffer regular seizures and he undergoes surgery in attempt to ease his symptoms.


 
Emily's Spina Bifida, though relatively mild, means that she is six months behind in her physical development and still in nappies.


 
Nathan has Down's Syndrome, but is learning to communicate through sign language and speech.


 
Zoe's Arthrogryposis severely affects her ability to walk and use her arms and she faces gruelling surgery and physiotherapy.


 

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  1. Just about the best documentary I've ever seen. The love and courage seen in both the children and parents is amazing, as close to divine as one will see in this world. I have a severely disabled granddaughter of 17 months, and this programme touched my heart like none other. When a disabled child is born, the parents and relatives enter a completely different world that was barely ever discerned before. The cruel stares and comments that parents and disabled children & babies have to deal with whenever leaving the home is unbelievable. If only healthy people could understand, and see that disabled children are just as "normal", just as "human", as they, that they to have a soul every bit as big as healthy children, and yearn to be treated the same way. More power to Channel 4 for such excellent programmes.
    Posted by Anna on 29/06/2009 21:47:13
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  2. Hi my name is rebecca i have 3 children a 5year old,a 1 eyar old and a 11 week old baby my other two boys are healthy but my son whos 11 weeks old had mylemenigecele spina bifida and hydrocephalis,he had surgery when he was 2 days old to close the wound on his back,and then he had surgery at 8 weeks old for a vp shunt to be placed in the brain to drain hydrocephalis(spinal fluid) hes such a joy to hve but some people are very cruel because they dont understand i would like to meet some other people with the same condition,he obviously is delayed in his development he only smiled at 10 weeks old.i found youre series of born to be different was very inspiring,I find it not very nice that people dont know about spina bifida and think people should know what they are staring at.people should ask not stare.
    Posted by rebecca humphreys on 05/05/2009 23:32:27
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  3. i was incredably touched by the series that was on tv last night following children with disablities. a wonderful program that touched me. maybe this is down to me myself having a 2year old daughter with m-cmtc syndrome which is a rare disorder that affects only around 80 people world wide.
    Posted by jemma williams on 29/04/2009 14:11:29
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