The following organisations help by providing information and support to anyone who cares for a child with a disability or special need
Contact a Family
www.cafamily.org.uk
Offering support, advice and information whatever condition a child has, with an online directory of specific conditions and rare disorders. Contact a Family are also able to put families in touch with each other.
Helpline: 0808 808 3555 (lines open Monday - Friday, 9.30am - 5pm)
Textphone: 0808 808 3556 (lines open Monday - Friday, 9.30am - 5pm)
Newlife Foundation
www.newlifefoundation.co.uk
Providing support and information about child disability. The confidential helpline is managed by a team of experienced nurses who have experience with wide range of birth defects.
Helpline: 0800 902 0095 (lines open Monday - Friday, 9.30am - 5pm)
Email: info@newlifecharity.co.uk
Antenatal Results and Choices – ARC
www.arc-uk.org
Providing information and support to parents who face difficult choices following antenatal tests for abnormalities.
Helpline: 0207 631 0285 (lines open Mondays - Fridays, 10am - 5.30pm)
Email: info@arc-uk.org
Advisory Centre for Education – ACE
www.ace-ed.org.uk
ACE are an independent advice service for parents in England and Wales to help with decisions on the most suitable education for a child. Advice is available across a range of topics including special educational needs, admissions, exclusion and bullying.
Helpline: 0808 800 5793 (lines open Monday - Friday, 10am - 5pm)
Specialist advice
Association for Spina Bifida and Hydrocephalus – ASBAH
www.asbah.org
Offering advice and information about Spina Bifida and Hydrocephalus.
Helpline: 01733 555 988 (lines open Monday - Friday, 9am - 5pm)
Email: info@asbah.org
The Arthrogryposis Group - TAG
www.tagonline.org.uk
TAG are a support group for people with the condition Arthrogryposis Multiplex Congenita and their families.
Helpline: 0800 028 4447 (lines open Monday - Friday, 9am - 5pm)
Email: info@taguk.org.uk
Restricted Growth Association
www.restrictedgrowth.co.uk
Offering support and information to families of children diagnosed with achondroplasia or restricted growth.
Helpline: 0300 111 1970 (lines open Monday, Thursday and Friday 9am - 5pm, Tuesday 9am - 9pm, Wednesday 9am - 1pm)
Email: office@restrictedgrowth.co.uk
Achondroplasia UK
www.achondroplasia.co.uk
Offering online support to parents of children diagnosed with achondroplasia.
The Tuberous Sclerosis Association – TSA
www.tuberous-sclerosis.org
Offering support to those affected by Tuberous Sclerosis Complex, their families and carers.
The Down's Syndrome Association
www.downs-syndrome.org.uk
Providing information and support to anyone with Down's syndrome, their families and carers.
Helpline: 0845 230 0372 (lines open Monday - Friday, 10am - 4pm)
Unique - The Rare Chromosome Disorder Support Group
www.rarechromo.org
Offering information and support to families of children with rare chromosome disorders. There are online leaflets on individual chromosome disorders including Trisomy 9P.
Information: 01883 330766 (lines open Monday - Friday, 9am - 6pm).
Email: info@rarechromo.org
Diabetes UK
www.diabetes.org.uk
Offering support to anyone with diabetes and helping people live with the condition.
Careline: 0845 120 2960 (lines open Monday to Friday, 9am - 5pm)
Email: info@diabetes.org.uk
The National Autistic Society - NAS
www.autism.org.uk
Providing information and advice to anyone with Autism or Aspergers Syndrome, and their families. Go online for links to NAS Scotland, NAS Northern Ireland, NAS Wales and regional / local contact.
Helpline: 0845 070 4004 (lines open Monday - Friday, 10am - 4pm)
MS Society
www.mssociety.org.uk
Providing information to anyone with Multiple Sclerosis and their families.
Helpline: 0808 800 8000 (lines open Monday - Friday, 9am - 9pm)
Email: helpline@mssociety.org.uk
Organisations that have provided help, support and resources for the children featured in Series 7
Angel Shed Theatre
www.angelshedtheatre.co.uk
An inclusive theatre company that invites any child, regardless of their educational or physical needs, or their socio-economic, religious or ethnic backgrounds, to be involved in the performing arts.
Centre 404
www.centre404.org.uk
An organisation that works towards building a community and a society where people with learning disabilities are valued. Based in the borough of Islington, Centre 404 have enabled children and adults with a learning disability and their carers to have a voice and to access community activities and support.
Diversions Family Support Network
www.diversions.org.uk
A support network, based in the North West of England, for families with a child or young person living with a bladder and/or bowel diversion or dysfunction.
Each
www.each.org.uk
Provides support for families and cares for children and young people with life-threatening conditions across Cambridgeshire, Essex, Norfolk and Suffolk.
KEEN London
www.keenlondon.org
A charity in London that offers one-to-one sports and recreational opportunities for children and young adults with special needs and their siblings, at no cost to their families and caregivers.
Information on call charges to 08 numbers:
0800 - Free from BT land lines. Other networks may charge and mobile costs will be incurred.
0808 - Free from BT land lines. Other networks may charge and mobile costs will be incurred.
0845 - Calls cost 4ppm daytime and 1ppm evening and weekends plus a 10p set up charge per call from a BT landline. Calls from other networks may be higher and from mobiles will cost considerably more.
0844 - Calls cost 5p per minute plus a 10p set up charge per call from a BT landline. Calls from other networks may be higher and from mobiles will cost considerably more.
