A Boy Called Alex

Useful links

Announcements

Tuesday 26 May 2009

Links and publications about cystic fibrosis.

  

Cystic Fibrosis Trust
www.cftrust.org.uk
Website offering support and information for people with cystic fibrosis and their families.

Cystic Fibrosis Medicine
www.cysticfibrosismedicine.com/
Contains a large collection of articles on cystic fibrosis as well as related links, two forums, a chatroom and a drug database.

Patient UK
www.patient.co.uk/showdoc/27000674/
Facts about cystic fibrosis.

Breathe On
www.breatheon.org.uk/
A charity which helps families with children on long-term ventilation (LTV).

 

Reading

The Stones Applaud: How Cystic Fibrosis Shaped My Childhood (Hardcover) by Teresa Anne Mullin (Providence House Publishers, 2007)
Get this book

Living on Borrowed Time: Life with Cystic Fibrosis (Paperback) by Debbie Pitts (Unknown, 2007)
Get this book

Taking Cystic Fibrosis to School ('Special Kids in School' Series) (Paperback) by Cynthia S. Henry and Tom Dineen (JayJo Books, 2000)
Get this book

Understanding Cystic Fibrosis. A Useful Guide for Families and Patients. (Paperback) by Karen Hopkin (University Press of Mississippi, 1998)
Get this book

 

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