understanding learning disability
understanding learning disability | help and info
help and info
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organisations
The Birth Defects Foundation (BDF)
BDF Centre
Hemlock Business Park
Hemlock Way
Cannock WS11 7GF
Tel: 01543 468888
Helpline: 08700 70 70 20 (Mon-Fri 9.30am-5pm)
E-mail: help@birthdefects.co.uk
Website: www.bdfcharity.co.uk
BDF Newlife is the UK's leading child health and research charity and helps the 1 in 16 babies with an inborn condition. The charity provides support, information and grants to families with a child with an inborn condition. The organisation also carries out research into conditions developed in utero and provides news about the latest developments affecting the children. The website itself is a huge source of information, good advice and training for families, couples who are trying for a baby and medical practitioners.
Contact a Family
209-211 City Road
London EC1V 1JN
Helpline: 0808 808 3555 (free Mon-Fri 10am-4pm)
Textphone: 0808 808 3556
Tel: 020 7608 8700
E-mail: info@cafamily.org.uk
Website: www.cafamily.org.uk
Organisation that provides information and support to anyone who cares for a child with a disability, special need or rare syndrome. Contact A Family is also a community of families in the same or a similar situation who provide a network of advice and support based on their experiences.
Down's Syndrome Association
Langdon Down Centre
2a Langdon Park
Teddington TW11 9PS
Tel: 0845 230 0372
Fax: 0845 230 0373
E-mail: info@downs-syndrome.org.uk
Website: www.downs-syndrome.org.uk
The Down's Syndrome Association began as a parent support group in Teddington and become a national charity dedicated to supporting people with Down's syndrome – about 1 in 1,000 people – their families and carers as well as providing information for those with a professional interest.
Down's Syndrome Scotland
158/160 Balgreen Road
Edinburgh EH11 3AU
Tel: 0131 313 4225
E-mail: info@dsscotland.org.uk
Website: www.dsscotland.org.uk
A membership-based organisation which works to improve the quality of life for everyone with Down's syndrome in Scotland. It includes a guide to state benefits, a list of helpful literature and education for people with Down's syndrome.
Foundation for People with Learning Disabilities
9th Floor, Sea Containers House
20 Upper Ground
London SE1 9QB
Tel:020 7802 03000
E-mail: fpld@fpld.org.uk
Website: www.learningdisabilities.org.uk
Part of the Mental Health Foundation, The Foundation for People with Learning Disabilities aims to improve the quality of life for people with learning disabilities. The website is the largest dealing with learning disability issues in the UK. It is a forum for issues that affect the lives of people with learning disabilities, describes the work of the foundation and acts as a gateway to some of the other resources on learning disabilities.
Mencap
123 Golden Lane
London EC1Y 0RT
Tel: 020 7454 0454
Helpline: 0808 808 1111 (free)
E-mail: information@mencap.org.uk
Website: www.mencap.org.uk
Mencap is the UK's leading charity for children and adults with a learning disability and their families and carers. It helps people to live as independently as possible, get involved in society and get into work as well as campaigning for the rights of people with a learning disability.
National Autistic Society
393 City Road
London EC1V 1NG
Helpline: 0845 070 4004 (Mon-Fri 10am-4pm)
Minicom: 0845 070 4003
Information Centre: 020 7903 3599
E-mail (helpline): autismhelpline@nas.org.uk
E-mail (information): info@nas.org.uk
Website: www.autism.org.uk
Information and advice service for all those affected by Autistic Spectrum Disorder (ASD) in the UK, including parents, other family members, carers and people with autism or Asperger's syndrome. Services offered include a telephone helpline, information sheets and an online enquiry service. They can also provide details of the nearest support group. The information centre can help anyone with a more general interest in the condition, such as social workers, teachers or healthcare professionals.
People FIRST
299 Kentish Town Road
London NW5 2TJ
Tel: 020 7485 6660
E-mail: general@peoplefirstltd.com
Website: www.peoplefirstltd.com
Organisation run by people with learning difficulties for people with learning difficulties. They campaign for the rights of people with learning difficulties and support self advocacy groups across the country with information, advice and training.
websites
Connects: the Mental Health and Learning Disability Portal
www.connects.org.uk
A world-wide, interactive, personalised forum for the sharing of information by people whose lives are touched by mental health problems and/or learning disabilities.
Down's Heart Group
www.downs-heart.downsnet.org
This charity offers support and information to families who have a member with Down's syndrome and congenital heart defects.
Down Syndrome Information Network
www.down-syndrome.info
Offers a range of information resources and online services to the international Down's syndrome community. It aims to provide information and services for families, carers, professionals and researchers worldwide.
United Response
www.unitedresponse.org.uk
UR supports people with learning difficulties and people with mental health problems across England to live in the community. It does this in various ways, such as supporting people in their own homes, helping people to access training and work opportunities and campaigning nationally for their rights.
reading
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Down Syndrome: Visions for the 21st century by William Cohen, Lynn Nadel and Myra Madnick (Editors) (John Wiley & Sons Inc, 2002) |
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Fine Motor Skills in Children with Down Syndrome by Maryanne Bruni (Woodbine House, 1998) |
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The Autistic Spectrum: A guide for parents and professionals by Lorna Wing (Constable and Robinson, 2003) |
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