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The Elephant Man: Joseph Merrick
Article from Channel 4 Science about the 'Elephant Man' who many people now believe was probably suffering from Proteus Syndrome. The article also discusses related issues such as genetic counselling and genetic testing.

Q&A: rare syndrome
'My brother's baby has just been diagnosed with a rare disorder. How can I help them?' Sheena, 30

Born to Be Different
This recent Channel 4 series followed six families raising children with serious health conditions.

Recorded information line transcript
Support for parents, family members or carers of children with a disability or special need can be found in our online guide.

Sick kids
Information and support for parents caring for children with life-threatening illnesses.