help and info
Channel 4 is not responsible for the content of third party websitesHutchinson-Gilford Progeria Syndrome Network
www.hgps.net
Website which aims to raise awareness about progeria and bring together information, news, features, stories and further links into one location.
The Progeria Project Foundation
www.progeriaproject.com
The goal of the Progeria Project is to assist the emotional, spiritual and financial needs of all progeria families as well as provide funding support for medical bills and equipment. They also act as an advocate for progeria children and work with other organisations to provide a support network.
Progeria Research Foundation (PRF)
www.progeriaresearch.org
Organisation created to raise awareness about progeria, educate and help the families, their doctors, researchers and the general public. PRF also funds medical research and runs research-related programs specifically aimed at finding the cause, treatments, and cure for this syndrome.
Journal of Medical Genetics 2004
http://jmg.bmjjournals.com/cgi/content/full/41/8/609
Research article about the Khan family which appeared in the Journal of Medical Genetics 2004;41:609-614. Dr Chattopadhyay, who appeared in the programme, is one of the authors of the article.
S. B. Devi Charity Home
6 Gulu Ostagar Lane
Calcutta 700006
India
www.shadhika.org/sbdevi
or
http://calcutta-project.ch/pub/...
Information about the charity home that provided care and support for the Khan family when they moved to Calcutta.
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