a brighter future for Parkinson's disease?

i'm all shook up: Parkinson's at 25 | a brighter future for Parkinson's disease? | help and info

help and info

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organisations

Parkinson's Disease Society (PDS)
215 Vauxhall Bridge Road
London SW1V 1EJ
Helpline: 0808 800 0303 (Mon-Fri 9.30am-9pm, Sat 9.30am-5.30pm)
Tel: 020 7931 8080
E-mail: enquiries@parkinsons.org.uk
Website: www.parkinsons.org.uk
Provide support, advice and information to people with Parkinson's, their carers, families and friends, and to health and social services professionals involved in management and care. The confidential helpline is staffed by nurses who offer advice, information, support and a 'listening ear' to anyone affected by Parkinson's. The website has lots of information including factsheets.

YPN – Younger Parkinson's Network
PDS UK
Vauxhall Bridge Road
London SW1V 1EJ
Helpline: 0808 800 0303 (Mon-Fri 9.30am-9pm, Sat 9.30am-5.30pm)
E-mail: info@yap-web.net
Website: www.yap-web.net
Although Parkinson's is more common in older people, in the UK it is estimated that of the 10,000 people diagnosed each year, 1 in 20 are under 40. YPN is a subsidiary body within the Parkinson's Disease Society with the specific aim of providing a focus for the needs of younger people with Parkinson's. It offers information, advice and support. See the website for details of local UK groups.

websites

Awakenings
www.parkinsonsdisease.com
This Parkinson's disease information site aims to improve understanding and management of PD. Features information on the causes of PD, advice on living with PD and coping with everyday life, plus details of PD support groups and associations.

Brain Research Trust
www.brt.org.uk
The Trust's aim is to promote and support the Institute's research and investigation into diseases of the brain and nervous system.

Deep Brain Stimulation
www.parkinsons.org.uk/Templates/Internal.asp?NodeID=93555
This section of the Parkinson's Disease Society website has information on deep brain stimulation, as well as other treatments for the condition.

EPDA (European Parkinson's Disease Association)
www.epda.eu.com
Aims to promote international understanding of Parkinson's disease and to enable patients and carers to draw on best caring practice worldwide, access the latest medical and surgical advice, and make informed choices to achieve the best quality of life possible.

'James'
http://james.parkinsons.org.uk
This website is about Parkinson's disease: what it is, where you can get support, what you can do to fight its effects, and how the Internet can help. Features lots of information and links to other sites.

The Parkinson's Disease Foundation (PDF)
www.pdf.org
American organisation devoted to education, advocacy, and the funding of research. Includes information about symptoms and treatments, and features a range of question and answers.

SPRING (Special Parkinson's Research INterest Group)
http://spring.parkinsons.org.uk
The official special interest group of The Parkinson's Disease Society of the UK.

The Michael J. Fox Foundation for Parkinson's Research
www.michaeljfox.org/
Dedicated to ensuring the development of a cure for Parkinson's disease the site has lots of up-to-date information on current research findings. The Canadian actor and founder Michael J. Fox was diagnosed with young-onset Parkinson's disease at age 30.

Michael J Fox Talks Stem Cell Research
www.youtube.com/watch?v=rkA1aN1osVk&mode=related&search=stem%20cll
Online interview with Fox over current rows concerning stem cell research and the likes of George Bush who totally oppose it on religious grounds. Scroll down and also watch Jon Stewart elaborate on Bush's moral hypocrisy.

reading

	Awakenings by Oliver Sacks (Picador, 1991) A narrative about the awakening of 20 patients from a zombie-like state they had suffered for over 40 years. A new drug meant the sleeping sickness disease was now treatable. Sacks offers his own observations and the patients' reactions. Get this book
	BMA Family Doctor Series: Parkinson's disease by Tony Smith (Editor) (Dorling Kindersley, 2000) A reference guide to PD which features practical advice and answers to common questions. Includes information on diagnosis and treatment. Get this book
	Lucky Man by Michael J. Fox (Ebury Press, 2003) The remarkable memoir of the actor Michael J Fox documenting his first ten years living with Parkinson's Disease. Get this book
	Parkinson's Disease: A Complete Guide for Patients and Families by William Weiner, Lisa Shulman and Anthony Lang (Johns Hopkins Press Health Books, 2002) Up-to-date information on symptoms, diagnosis, treatment and management of PD to help people cope with medical, emotional and practical challenges. There is advice on medications, diet, exercise, complementary therapies and surgery. Get this book
	The Parkinson's Disease Handbook by Richard Godwin-Austen (Sheldon Press, 1997) An informative guide on PD aimed at anyone with the disease, and their friends and family. It discusses symptoms and outlines available treatments. Get this book
	Parkinson's Disease: The complete guide for patients and caregivers by Abraham Lieberman and Frank Williams (Prentice Hall, 1993) Provides advice on living with PD, considers various medications available, looks at alternative treatments and discusses the importance of fitness and healthy eating. Get this book
	Next To Me: Luck, Leadership and Living With Parkinson's by David Jones (Nicholas Brealey Publishing 2005) The story of not only how David Jones built Next into a major player in the retail clothing sector but did so whilst living with Parkinson's disease. His story of how he was able to be a highly successful businessman and deal with the challenges of having Parkinson's is an inspirational one on all levels. Get this book

(updated August 2006)

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