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getting to grip(e)s with chemotherapy

chemotherapy | help and info | Chris's experience

help and info

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organisations

Breast Cancer Care
Kiln House
210 New Kings Road
London SW6 4NZ
Helpline: 0808 800 6000 (Mon-Fri 9am-5pm; Sat 9am-2pm)
E-mail: info@breastcancercare.org.uk
Website: www.breastcancercare.org.uk
Offers information and support to women and men who have or fear they may have breast cancer, and their families and friends. A range of publications including booklets and factsheets on all aspects of breast cancer are available free on the website. Can also give information about The Lavender Trust, which raises money to specifically fund Breast Cancer Care's support and information services for younger women.

CancerBACUP
3 Bath Place
Rivington Street
London EC2A 3JR
Helpline: 0808 800 1234 or 020 7739 2280 (Mon-Fri 9am-8pm)
Tel: 020 7696 9003 (Mon-Fri 9am-5.30pm)
Website: www.cancerbacup.org.uk
Provides up-to-date information, advice and support to cancer patients, and their families and friends on all aspects of cancer and its treatment, and on the practical and emotional problems of living with the illness. The helpline, above, is staffed by specialist cancer nurses.

Everyman
The Institute of Cancer Research
Freepost LON 922
London SW7 3YY
Helpline: 0800 731 9468 (Tues-Weds 6.30-9pm)
Tel: 020 7263 8884
E-mail: everyman@icr.ac.uk
Website: www.everymanproject.co.uk
Everyman is The Institute of Cancer Research's national campaign to raise awareness and funding for male cancers. Call the freephone number above for more information about male cancers or to make a donation. The website has factsheets about prostate and testicular cancer.

Macmillian Cancer Relief
89 Albert Embankment
London SE1 7UQ
Cancerline: 0808 808 2020 (Mon-Fri 9am-6pm)
Textphone: 0808 808 0121
E-mail: cancerline@macmillan.org.uk
Website: www.cancerlink.org
Contact the freephone Cancerline, staffed by people with experiences of cancer, for cancer information and support, details of local organisations, relevant publications and other resources. Website has further information.

Teenage Cancer Trust
38 Warren Street
London W1T 6AE
Tel: 020 7387 1000
E-mail: tct@teenagecancertrust.org
Website: www.teenagecancertrust.org
Charity that focuses on the needs of teenagers and young adults with cancer, leukaemia, Hodgkin's and related diseases by providing specialist teenage units in NHS hospitals.

websites

Association of Cancer Online Resources
www.acor.org
A collection of online communities designed to provide timely and accurate information about cancer in a supportive environment.

Cancer Characters
http://coninfo.nursing.uiowa.edu/sites/
pedspain/CancerCh/index.htm

A cast of cartoon cancer characters – described for kids and parents to understand.

Captain Chemo
www.royalmarsden.org.uk/captchemo/index.asp
Website and computer games for young people with cancer. Captain Chemo is a cartoon character created by Ben de Garis, a former Royal Marsden patient. Here you can help to shoot and destroy tumours, answer questions about cancer and more.

Chemo basket and other stuff
www.cancersupporters.com/chemo_thread.html
Thread in a forum about chemotherapy, its effects and tips for getting through it.

F*** Cancer
http://humorosis.diarypro.com/dp/
clients/archive.asp

Steve was diagnosed with Hodgkin's Lymphoma, a form of cancer, in March 1996. He started this online diary six days later, and records his feelings about the subsequent chemotherapy and radiation treatment with frankness and humour.

Planet Cancer
www.planetcancer.org
With features entitled 'Top 10 Ways to Disrupt the Waiting Room' and 'Cancer Comics' this US site was written to reach out to young adults with cancer by recording 'the often entertaining, frequently bizarre and occasionally informative experiences and thoughts of your fellow natives on Planet Cancer.' The site also includes book recommendations, poems, stories, tips and insights.

Teenagers' Guide to Beating Cancer
www.wessexcancer.org/support/teenager_cancer.htm
This site, from Wessex Cancer Trust, has been put together with the help of a group of teenagers who have suffered from a form of cancer. It's about the everyday questions you might have, from the beginning of treatment to going back to school. It also explains the possible after effects of treatment.

Teens Living with Cancer
www.teenslivingwithcancer.org
Website written for teens with cancer, their family and friends. Includes features like 'Weird Body Issues' (about the changes that can happen to your body during chemo or radiation), 'Being a sibling' and 'Afraid to ask'.

The Enemy Within
www.guardian.co.uk/medicine/
story/0,11381,1373233,00.html

Writing in the Guardian in 2004, Dina Rabinovitch describes her first chemotherapy session.

Your Hair and Skin
http://www.cancerhelp.org.uk/help/default.asp?page=313
Information from Cancer Research UK about the ways chemotherapy affects your skin and hair.

reading

book cover

The Chemotherapy and Radiation Therapy Survival Guide by Judith McKay and Nancee Hirano (New Harbinger Publications, 1998)
Written by experienced chemotherapy and oncology nurses, this book explains how chemotherapy and radiation therapy works, and provides practical suggestions to prevent, minimize or cope with the side effects, such as nausea, hair loss, fatigue and digestive problems.
Get this book

 
book cover

The Cancer Chemotherapy Handbook by David Fischer, et al (Mosby, 2003)
This pocket-sized reference is a practical guide to the care and treatment of cancer patients and contains a comprehensive list of chemotherapeutic drugs.
Get this book

 
book cover

Chemo Girl by Christine Richmond (Jones and Bartlett Publishers, 1997)
Chemo Girl comes to the aid of a young girl with a cancer called Rhabdomyosarcoma.
Get this book

 
book cover

It's Not Like That, Actually by Kate Carr (Vermilion, 2004)
This book charts the author's diagnosis of breast cancer and treatment, while explaining the ups and downs of moving on from there and dealing with the emotional burden that friends and family find difficult to understand.
Get this book

 
book cover

Staring at Ceilings: A Young Man's War Against Cancer by Jonathan James Kay (Matador, 2005)
Jonathan learnt at the age of 20 that he had leukaemia. Throughout his treatment he keeps a diary, telling it how it is: the effects of chemotherapy and the reactions of those around him.
Get this book

 

(May 2005)

 

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