Head and Spine

17 January 2017


Support information for epilepsy, neurological disorders, stroke, head & brain injury, aphasia. Please scroll down for full list.


EPILEPSY

Epilepsy Action
http://www.epilepsy.org.uk
Advice, support and information on all aspects of living with epilepsy.
Helpline: 0808 800 5050 (lines open Tuesday, Wednesday & Thursday 8.30am – 8pm, Monday & Friday closed at 5.30pm)
Text: 07537410044 (reply within 24 hours on working days)
Email: helpline@epilepsy.org.uk

Young Epilepsy

http://youngepilepsy.org.uk/
Advice information for young people with epilepsy.
Helpline: 01342 831342 (lines open Monday – Friday 9am – 1pm)
Email: helpline@youngepilepsy.org.uk


NEUROLOGICAL DISORDERS

Multiple Sclerosis Society
http://www.mssociety.org.uk
Support information for anyone affected by MS, with a network of local branches.
Helpline: 0808 800 8000 (lines open Monday – Friday 9am-9pm)
Next Generation Text for people with hearing and/or speech difficulties: 18001 0808 800 8000

MS-UK
http://www.ms-uk.org/
Providing support advice for anyone affected by MS.
Advice: 0800 783 0518 (lines open Monday – Friday 9am – 5pm

MS Trust
http://www.mstrust.org.uk/information/publications/factsheets/sativex.jsp
Information on Sativex and MS.

Motor Neurone Disease Association
http://www.mndassociation.org/
Information and support for anyone living with a diagnosis of MND in all its forms - ALS, PBP, PMA and PLS.
Helpline:
MND Connect: 0808 802 6262 (lines open Monday–Friday 9am-5pm & 7pm-10.30pm)
Email: mndconnect@mndassociation.org

MND Scotland
http://www.mndscotland.org.uk/
Support for anyone affected by Motor Neurone Disease in Scotland.

NHS – Motor Neurone Disease

http://www.nhs.uk/conditions/Motor-neurone-disease/Pages/Introduction.aspx
NHS information about Motor Neurone Disease

Parkinsons UK
http://www.parkinsons.org.uk/
Offering support to anyone affected by Parkinson’s disease. Local groups can facilitate bringing together sufferers, carers and families.
Helpline: 0808 800 0303 (lines open 9am-7pm)
Email: hello@parkinsons.org.uk
Text Relay: 18001 0808 800 0303 (for textphone users only)

Rett Syndrome Research Trust
http://www.reverserett.org.uk/
Providing information about Rett Syndrome and its treatment.
Email: enquiries@reverserett.org.uk


STROKE, HEAD & BRAIN INJURY, APHASIA

Stroke Association
http://www.stroke.org.uk
The Stoke Association support anyone affected by stroke and provide advice on preventing further strokes.
Helpline: 0303 3033 100 (lines open Monday - Friday 9am - 5pm)
Email: info@stroke.org.uk

The Brain and Spine Foundation

http://www.brainandspine.org.uk
Offering support and advice about prevention, treatment and care of disorders of the brain and spine.
Helpline: 0808 808 1000 (lines open Monday – Thursday 9am - 4pm, Friday 9am – 1pm)

Headway
http://www.headway.org.uk/home.aspx
Headway provides support and advice to anyone affected by an acquired brain injury. A network of local groups and branches throughout the UK offer a wide range of services.
Helpline: 0808 800 2244 (lines open Monday - Friday 9am-5pm).
Email: helpline@headway.org.uk

BIRT – Brain Injury Rehabilitation Trust
http://www.thedtgroup.org/brain-injury/
Information and advice for anyone dealing with the unique needs of brain or head injury rehabilitation.

Back Up

http://www.backuptrust.org.uk/home
Support for everyone whose life is affected by a spinal cord injury.

The Brain Tumour Charity
http://www.thebraintumourcharity.org/
Supporting anyone affected by a brain tumour, as well as family, carers and friends.
Helpline: 0808 800 0004 (lines open Monday – Friday 9am -5pm)
Email: support@thebraintumourcharity.org

Afasic
http://www.afasicengland.org.uk/
Afasic support children and young adults (up to 25) with communication disability, as well as their parents and the professionals working with them. Also hosting a network of support groups, publications, training and online message boards.
Helpline: 0300 666 9410 (Monday & Tuesday 9.15am – 2.30pm, Wednesday - Friday 10.30am – 2.30pm)

Encephalitis Society
http://www.encephalitis.info/
Offering support and information for anyone affected by encephalitis.


OTHER CONDITIONS & ORGANISATIONS


Shine
http://www.shinecharity.org.uk/
Information and support for those affected by Spina Bifida or Hydrocephalus.

Patients Association
http://www.patients-association.org.uk/
Working for better access to accurate and independent information for patients and the public; equal access to high quality health care for patients; and the right for patients to be involved in all aspects of decision making regarding their health care.
Helpline: 0208 423 8998 (lines open Monday – Friday 9.30am – 5pm)
Email: helpline@patients-association.com


Wheelchair Users Group
http://www.wheelchairusers.org.uk/
Assisting wheelchair users in leading full and active lives.

Patient UK
http://patient.info/
Information by medical professionals on a wide range of medical conditions, diseases and medicines.