Support Organisations - Disfigurement

16 March 2017


GENERAL SUPPORT

The Katie Piper Foundation
http://www.katiepiperfoundation.org.uk/
The Katie Piper Foundation helps individuals with burns and scars.

Changing Faces
http://www.changingfaces.org.uk
Changing Faces support anyone with disfigurements of the face, hands and body.
Helpline: 0300 0120 275 (lines open Monday - Friday 10am - 4pm)
Skin Camouflage: 0300 0120 276 (line open Monday – Friday 10am – 4pm)

Let’s Face It
http://www.lets-face-it.org.uk
Let’s Face It are a support network for anyone with facial disfigurement, as well as their families.

About Face
http://www.omfsaboutface.co.uk/index.htm
Supporting anyone undergoing the treatment of Orofacial Cancers, trauma as well as other facial deformities, including support for their families.

Contact a Family
http://www.cafamily.org.uk<
Contact a Family offer support for all childhood conditions, are also able to put families in touch. Featuring a directory of conditions and rare disorders online.
Helpline: 0808 808 3555 (lines open Monday – Friday 9.30am - 5pm)
Email: helpline@cafamily.org.uk

CLAPA - Cleft Lip and Palate Association
https://www.clapa.com/
Information and support on cleft lip and palate treatment.

British Association of Skin Camouflage
http://www.skin-camouflage.net
Helping patients to increase confidence by the skilful application of skin camouflage.

NHS Choices
http://www.nhs.uk/Livewell/cosmeticsurgery/Pages/Non-surgicalprocedures.aspx
NHS information about non-surgical cosmetic procedures.


SPECIALIST SUPPORT


British Foot and Ankle Society
http://www.bofas.org.uk/
Information about conditions of the feet and ankles.
07500 778965 (leave contact details for a return call within 24hours)

Mouth Cancer Foundation
http://www.mouthcancerfoundation.org//
Providing support to anyone suffering with oral, head or neck cancer.
Helpline: 01924 950 950 (lines open Monday – Friday 9am - 5pm)
Email: info@mouthcancerfoundation.org

Headlines
http://www.headlines.org.uk/
Headlines are a craniofacial support group.
Information: 01454 850557 (lines open 9am – 9pm)
Email: info@headlines.org.uk

Apert Syndrome

http://www.cafamily.org.uk/medical-information/conditions/a/apert-syndrome/
Information on this rare genetic condition from Contact a Family.

Birthmark Support Group
http://www.birthmarksupportgroup.org.uk/
Offering support to anyone with a birthmark including port wine stain, haemangioma and congenital melanocytic nevus.

Dan’s Fund for Burns
http://www.dansfundforburns.org/index.php
Providing support for burns survivors.

Burn Centre Care
http://www.burncentrecare.co.uk/recovering.html
Information on rehabilitation following a severe burn.

Children’s Burns Trust
http://www.cbtrust.org.uk/index.shtml
Offering support and rehabilitation information for families of children following a burn or scald.

Crouzon Syndrome
http://www.cafamily.org.uk/medical-information/conditions/c/crouzon-syndrome/
Providing information about Crouzon Syndrome

The Neuro Foundation
http://www.nfauk.org/
The Neuro Foundation offer support to anyone living with Neurofibromatosis.

Saethre-Chotzen Syndrome

http://www.headlines.org.uk/saethre_chotzen_syndrome.asp
Providing information about Saethre-Chotzen Syndrome

Treacher Collins Syndrome
http://www.cafamily.org.uk/medical-information/conditions/t/treacher-collins-syndrome/
Providing information about Treacher Collins Syndrome.

Harlequin Ichthysis
http://www.ichthyosis.org.uk/157/harlequin-ichthyosis/

The Ichthyosis Support Group provide information on this rare condition.

SURGERY

British Association of Oral and Maxillofacial Surgeons - BAOMS

http://www.baoms.org.uk/
Information on surgery affecting the mouth, jaws, face and neck.

NHS – Breast Reduction Surgery

http://www.nhs.uk/conditions/Breast-reduction/Pages/Introduction.aspx
Information on breast reduction surgery.

British Association of Plastic Reconstructive and Aesthetic Surgeons
http://www.bapras.org.uk/
Information about reconstructive surgery.

British Association of Aesthetic Plastic Surgeons
http://www.baaps.org.uk/
Information about BAAPS membership for trained plastic surgeons on the Specialist Register of Plastic Surgeons and maintained by the General Medical Council.

Cosmetic Dentistry Guide
http://www.cosmeticdentistryguide.co.uk/
Offering informational on cosmetic dental procedures and how to find a local cosmetic dentist